Challenging behavior in CHARGE Syndrome

Timothy S. Hartshorne, Abby D. Cypher

Research output: Contribution to journalArticlepeer-review

26 Scopus citations


Little is known, beyond anecdotal reports, concerning the challenging behaviors of some children with CHARGE Syndrome. One hundred respondents from the US (74%) and seven foreign countries, primarily mothers (91%), completed a web-based survey regarding the behaviors of a person with CHARGE (median age of 7). Included was a medical history and a list of 71 behaviors based on the diagnostic categories most frequently reported anecdotally. Findings supported these reports. Behaviors typical of autistic disorder, attention deficit/hyperactivity disorder, obsessive-compulsive disorder, Tourette syndrome, and deaf-blindness were characteristic of these children. Those who were deaf-blind received higher ratings on these challenging behaviors.

Original languageEnglish
Pages (from-to)41-52
Number of pages12
JournalMental Health Aspects of Developmental Disabilities
Issue number2
StatePublished - Apr 2004


  • Attention deficit/hyperactivity disorder
  • Autism
  • Behavior
  • Deaf-blind
  • Developmental disabilities
  • Intellectual disability
  • Mental retardation
  • Obsessive compulsive disorder
  • Psychiatric disorder
  • Tics


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