Co-constructing personal narratives in traumatic brain injury: A view from the storytellers’ lens

Research output: Other contributionpeer-review

Abstract

Research Objectives To explore the lived experience of persons with TBI following an intervention designed to co-construct a personal narrative about their life. Design Qualitative phenomenological interpretative analysis that explored the lived experience of individuals who participated in an intervention designed to co-construct a personal narrative about life with TBI. Setting Inpatient and outpatient brain injury facility. Participants 8 participants ages 24-71 with clinician-confirmed TBI (2 mild; 2 moderate; 4 severe). Interventions 7-month group intervention designed to co-construct and share a personal narrative about life with TBI. Main Outcome Measure(s) Semi-structured qualitative interviews were conducted within 2 weeks of completion of the personal narrative co-construction intervention. Interviews were organized into four sections 1) developing your story; 2) sharing your story; 3) how stories meaningfully link the past, present, and future; and 4) thoughts on co-constructing stories with other persons with TBI. Interviews were videotaped and transcribed. Results A 6-step interpretative phenomenological analysis process (IPA) was used to identify themes. IPA analysis revealed six themes; identity and thinking about the future; it was emotional; helpful supports; sense of pride; sense of community; and advocacy. Conclusions Co-construction of personal narratives about life with TBI can be a meaningful client-centered therapeutic activity. Future research may explore methods for training clinicians in narrative co-construction methods to support clients in opportunities to make meaning out of the trauma of TBI.
Original languageEnglish
PublisherArchives of Physical Medicine and Rehabilitation
Number of pages94
Volume99
StatePublished - Oct 2018

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