Disclosures of Cystic Fibrosis-Related Information to Romantic Partners

Katie Broekema, Kirsten M. Weber

Research output: Contribution to journalArticlepeer-review

8 Scopus citations

Abstract

In this article, we offer insights into how individuals with cystic fibrosis (CF) share information about their disease with a romantic partner. Using communication privacy management as a sensitizing theoretical construct, four themes emerged following 13 qualitative interviews with persons with CF. Themes about sharing CF-related information with a romantic partner include weighing the risks and benefits of sharing information, the role of health-related triggered rules, the motivations for disclosures, and the reactions from outsiders. Implications of the research suggest a need for more nuanced understandings of how privacy rules are communicated in relationships, how the mismanagement of co-owned information influences future disclosures, how the public-private nature of rare genetic illnesses is managed, and how people with genetic illnesses make disclosure decisions.

Original languageEnglish
Pages (from-to)1575-1585
Number of pages11
JournalQualitative Health Research
Volume27
Issue number10
DOIs
StatePublished - Aug 1 2017

Keywords

  • chronic illness
  • communication
  • communication privacy management
  • cystic fibrosis
  • families
  • fertility
  • genetic disorders
  • genetics
  • health
  • illness and disease
  • information seeking
  • interpretive approach
  • lived experience
  • privacy
  • qualitative methods
  • quality of life
  • reproduction
  • romantic relationships
  • semistructured interviews
  • uncertainty

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