Global emerging HEmophilia panel (GEHEP): A multinational collaboration for advancing hemophilia research and treatment

Paula James, Raj Kasthuri, Rebecca Kruse-Jarres, Amit Soni, Roshni Kulkarni, Christoph Bidlingmaier, Meera Chitlur, Patrick Fogarty, Keith Gomez, Pål Andrè Holm, Johnny Mahlangu, Maria Elisa Mancuso, Maria Eva Mingot-Castellano, Gerry Dolan

Research output: Contribution to journalReview articlepeer-review

4 Scopus citations

Abstract

GEHEP, established in 2009, is an independent, multi-institutional, international consortium of early career hematology specialists in the field of hemophilia and other inherited bleeding disorders. The main objective of the group, whose members practice at institutions in North America, Europe, and South Africa, is to advance hemophilia care by providing a forum for mentored collaborative research, developing programs for improving clinical care, and promoting academic career development of junior faculty. GEHEP members collect and document anonymized data on intra- and interinstitutional differences in patient populations, diagnosis, and treatment in the field of hemophilia and other bleeding disorders. To facilitate sharing of aggregated data among GEHEP members, a global protocol was developed and approved by most members' local institutional review board. Current GEHEP research initiatives are varied, encompassing work in pediatric and adult patients. GEHEP members have presented research at international meetings on the initiation of prophylaxis in children, use of immune tolerance induction in adults, and prevalence of acute coronary syndromes in older patients with hemophilia. The main goal of the continuing work of GEHEP is to advance the care of patients with hemophilia worldwide.

Original languageEnglish
Pages (from-to)352-355
Number of pages4
JournalTransfusion Medicine and Hemotherapy
Volume40
Issue number5
DOIs
StatePublished - 2013

Keywords

  • Blood coagulation disorder
  • Clinical research
  • GEHEP
  • Hemophilia
  • International cooperation

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