Making Autism Research Inclusive by Attending to Intersectionality: a Review of the Research Ethics Literature

M. A. Cascio, J. A. Weiss, E. Racine

Research output: Contribution to journalReview articlepeer-review

16 Scopus citations

Abstract

Growth in autism research necessitates corresponding attention to autism research ethics, including ethical and meaningful inclusion of diverse participants. This paper presents the results of a review of research ethics literature, strengthened by consultation with a task force involving autism professionals, family members, and self-advocates on the spectrum. It reviews research ethics concerns around sex and gender; level of support needs; communication modes; race, ethnicity, geography, and language; socioeconomic status; and age. The exclusion of marginalized subgroups of people with autism is a major ethical concern. Researchers can facilitate inclusion by using inclusive terminology, developing accessible communication strategies, or traveling to meet participants. A person-oriented research ethics framework described in this paper structures the advice offered in the literature to create inclusive and supportive research environments.

Original languageEnglish
Pages (from-to)22-36
Number of pages15
JournalReview Journal of Autism and Developmental Disorders
Volume8
Issue number1
DOIs
StatePublished - Mar 2021

Keywords

  • Demographics
  • Inclusion
  • Intersectionality
  • Lived experience
  • Person-oriented research ethics
  • Stereotypes

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