Abstract
Growth in autism research necessitates corresponding attention to autism research ethics, including ethical and meaningful inclusion of diverse participants. This paper presents the results of a review of research ethics literature, strengthened by consultation with a task force involving autism professionals, family members, and self-advocates on the spectrum. It reviews research ethics concerns around sex and gender; level of support needs; communication modes; race, ethnicity, geography, and language; socioeconomic status; and age. The exclusion of marginalized subgroups of people with autism is a major ethical concern. Researchers can facilitate inclusion by using inclusive terminology, developing accessible communication strategies, or traveling to meet participants. A person-oriented research ethics framework described in this paper structures the advice offered in the literature to create inclusive and supportive research environments.
Original language | English |
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Pages (from-to) | 22-36 |
Number of pages | 15 |
Journal | Review Journal of Autism and Developmental Disorders |
Volume | 8 |
Issue number | 1 |
DOIs | |
State | Published - Mar 2021 |
Keywords
- Demographics
- Inclusion
- Intersectionality
- Lived experience
- Person-oriented research ethics
- Stereotypes