Person-oriented research ethics: integrating relational and everyday ethics in research

M. Ariel Cascio, Eric Racine

Research output: Contribution to journalArticlepeer-review

18 Scopus citations

Abstract

Research ethics is often understood by researchers primarily through the regulatory framework reflected in the research ethics review process. This regulatory understanding does not encompass the range of ethical considerations in research, notably those associated with the relational and everyday aspects of human subject research. In order to support researchers in their effort to adopt a broader lens, this article presents a “person-oriented research ethics” approach. Five practical guideposts of person-oriented research ethics are identified, as follows: (1) respect for holistic personhood; (2) acknowledgement of lived world; (3) individualization; (4) focus on researcher-participant relationships; and (5) empowerment in decision-making. These guideposts are defined and illustrated with respect to different aspects of the research process (e.g., research design, recruitment, data collection). The person-oriented research ethics approach provides a toolkit to individual researchers, research groups, and research institutions in both biomedical and social science research wishing to expand their commitment to ethics in research.

Original languageEnglish
Pages (from-to)170-197
Number of pages28
JournalAccountability in Research
Volume25
Issue number3
DOIs
StatePublished - Apr 3 2018

Keywords

  • Human subjects ethics
  • informed consent
  • justice in research
  • public trust
  • research ethics
  • vulnerable populations

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