TY - JOUR
T1 - Person-oriented research ethics
T2 - integrating relational and everyday ethics in research
AU - Cascio, M. Ariel
AU - Racine, Eric
N1 - Funding Information:
This work was supported by the Fonds de Recherche du Québec–Santé (30998); Institut de recherches cliniques de Montréal (Angelo-Pizzagalli Foundation Scholarship); Kids Brain Health Network (NeuroEthics Excellence and Societal Innovation Core).
Funding Information:
This project is funded by a Kids Brain Health Network Core Award, the NeuroEthics Excellence and Societal Innovation Core (NESIC; Racine co-PI). Dr. Cascio is additionally funded by the Angelo-Pizzagalli Scholarship of the IRCM Foundation. Dr. Racine is additionally funded by a FRQ-S senior scholar career award. Thank you to current and former members of the Neuroethics Research Unit and all others who provided feedback on this project, and especially to Jelena Poleksic for reviewing and proofreading the final manuscript.
Publisher Copyright:
© 2018 Informa UK Limited, trading as Taylor & Francis Group.
PY - 2018/4/3
Y1 - 2018/4/3
N2 - Research ethics is often understood by researchers primarily through the regulatory framework reflected in the research ethics review process. This regulatory understanding does not encompass the range of ethical considerations in research, notably those associated with the relational and everyday aspects of human subject research. In order to support researchers in their effort to adopt a broader lens, this article presents a “person-oriented research ethics” approach. Five practical guideposts of person-oriented research ethics are identified, as follows: (1) respect for holistic personhood; (2) acknowledgement of lived world; (3) individualization; (4) focus on researcher-participant relationships; and (5) empowerment in decision-making. These guideposts are defined and illustrated with respect to different aspects of the research process (e.g., research design, recruitment, data collection). The person-oriented research ethics approach provides a toolkit to individual researchers, research groups, and research institutions in both biomedical and social science research wishing to expand their commitment to ethics in research.
AB - Research ethics is often understood by researchers primarily through the regulatory framework reflected in the research ethics review process. This regulatory understanding does not encompass the range of ethical considerations in research, notably those associated with the relational and everyday aspects of human subject research. In order to support researchers in their effort to adopt a broader lens, this article presents a “person-oriented research ethics” approach. Five practical guideposts of person-oriented research ethics are identified, as follows: (1) respect for holistic personhood; (2) acknowledgement of lived world; (3) individualization; (4) focus on researcher-participant relationships; and (5) empowerment in decision-making. These guideposts are defined and illustrated with respect to different aspects of the research process (e.g., research design, recruitment, data collection). The person-oriented research ethics approach provides a toolkit to individual researchers, research groups, and research institutions in both biomedical and social science research wishing to expand their commitment to ethics in research.
KW - Human subjects ethics
KW - informed consent
KW - justice in research
KW - public trust
KW - research ethics
KW - vulnerable populations
UR - http://www.scopus.com/inward/record.url?scp=85042918446&partnerID=8YFLogxK
U2 - 10.1080/08989621.2018.1442218
DO - 10.1080/08989621.2018.1442218
M3 - Article
C2 - 29451025
AN - SCOPUS:85042918446
VL - 25
SP - 170
EP - 197
JO - Accountability in Research
JF - Accountability in Research
SN - 0898-9621
IS - 3
ER -