TY - JOUR
T1 - The development of an educational checklist for individuals with CHARGE syndrome
AU - Slavin, Lillian J.
AU - Hartshorne, Timothy S.
N1 - Funding Information:
The authors received no financial support for the research, authorship, and/or publication of this article. The authors would like to acknowledge the Panel of Experts for the time they devoted in helping develop this Checklist: David Brown, Beth Kennedy, Rob Last, Jude Nicholas, Nancy Salem-Hartshorne, and Kasee Stratton. Additionally, the authors would like to acknowledge the members of the CHARGE Syndrome Research Lab at CMU for their help in preliminary development of many aspects of the checklist. The authors would also like to acknowledge Sheri Stanger and the CHARGE Syndrome Foundation for helping distribute the Checklist to the CHARGE syndrome state parent liaisons during phase eight of the development. Finally, the authors would like to acknowledge the parents, state deafblind project employees, and professionals from Perkins School for the Blind, Michigan School for the Deaf, and the Western Pennsylvania School for the Deaf who rated the Checklist during phase eight of development.
Publisher Copyright:
© 2019 The British Society of Developmental Disabilities.
PY - 2021
Y1 - 2021
N2 - CHARGE syndrome is a rare genetic disorder which can impact every sensory system and is often associated with significant medical, communicative, developmental, and behavioral difficulties. Due to the rarity and complexity of CHARGE syndrome, educators often lack the expertise required to effectively understand and accommodate the needs of these students. Therefore, an educational checklist (i.e. “Checklist”) was developed to provide a comprehensive tool that educators and related professionals can utilize to aid in the education of individuals with CHARGE syndrome. The Checklist was developed through collaboration with an international panel of experts; CHARGE Syndrome Research Lab at Central Michigan University (CMU); and a select group consisting of parents, professionals, and state deafblind project employees. The Checklist outlines major CHARGE characteristics, resulting educational needs, team members, consulting professionals, and suggested methods of accommodation. The Checklist may be utilized to develop and inform services for individuals with CHARGE syndrome in the schools.
AB - CHARGE syndrome is a rare genetic disorder which can impact every sensory system and is often associated with significant medical, communicative, developmental, and behavioral difficulties. Due to the rarity and complexity of CHARGE syndrome, educators often lack the expertise required to effectively understand and accommodate the needs of these students. Therefore, an educational checklist (i.e. “Checklist”) was developed to provide a comprehensive tool that educators and related professionals can utilize to aid in the education of individuals with CHARGE syndrome. The Checklist was developed through collaboration with an international panel of experts; CHARGE Syndrome Research Lab at Central Michigan University (CMU); and a select group consisting of parents, professionals, and state deafblind project employees. The Checklist outlines major CHARGE characteristics, resulting educational needs, team members, consulting professionals, and suggested methods of accommodation. The Checklist may be utilized to develop and inform services for individuals with CHARGE syndrome in the schools.
KW - CHARGE syndrome
KW - IEP
KW - checklist
KW - multidisciplinary team
KW - special education
UR - http://www.scopus.com/inward/record.url?scp=85070260341&partnerID=8YFLogxK
U2 - 10.1080/20473869.2019.1642639
DO - 10.1080/20473869.2019.1642639
M3 - Article
AN - SCOPUS:85070260341
SN - 2047-3869
VL - 67
SP - 256
EP - 262
JO - International Journal of Developmental Disabilities
JF - International Journal of Developmental Disabilities
IS - 4
ER -